thesophiestory.co.uk Report : Visit Site


  • Server:Microsoft-IIS/7.0...
    X-Powered-By:ASP.NET

    The main IP address: 88.208.221.65,Your server United Kingdom,Gloucester ISP:Fast Hosts Ltd  TLD:uk CountryCode:GB

    The description :sophie patmore is permanently connected to a ventilator and lives with an extremely rare form of mitochondrial disease. read her story here ......

    This report updates in 10-Jun-2018

Created Date:2008-05-29
Changed Date:2017-02-28

Technical data of the thesophiestory.co.uk


Geo IP provides you such as latitude, longitude and ISP (Internet Service Provider) etc. informations. Our GeoIP service found where is host thesophiestory.co.uk. Currently, hosted in United Kingdom and its service provider is Fast Hosts Ltd .

Latitude: 51.86568069458
Longitude: -2.2430999279022
Country: United Kingdom (GB)
City: Gloucester
Region: England
ISP: Fast Hosts Ltd

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HTTP Header Analysis


HTTP Header information is a part of HTTP protocol that a user's browser sends to called Microsoft-IIS/7.0 containing the details of what the browser wants and will accept back from the web server.

Content-Length:52573
X-AspNet-Version:2.0.50727
X-Powered-By:ASP.NET
Server:Microsoft-IIS/7.0
Cache-Control:private
Date:Sun, 10 Jun 2018 15:36:42 GMT
Content-Type:text/html; charset=iso-8859-1

DNS

soa:ns1.meganameservers.eu. postmaster.meganameservers.eu. 2018013023 86400 86400 3600000 86400
ns:ns1.meganameservers.eu.
ns2.meganameservers.eu.
ns3.meganameservers.eu.
ipv4:IP:88.208.221.65
ASN:8560
OWNER:ONEANDONE-AS Brauerstrasse 48, DE
Country:GB
mx:MX preference = 10, mail exchanger = patmore.dynalias.com.

HtmlToText

latest news 28/04/2011 09:41:55 running for wheels of experience annette's childhood friend fliss and her friend jenn are running for wheels of experience - please sponsor them! read more >> 01/12/2010 19:58:21 the wheels of experience pamper evening our first fundraising event for the 'wheels of experience' raises £1,173.96! read more >> 13/09/2010 15:47:01 sophie's switch toys a great blog on the 'one switch' site about sophie and her switch toys read more >> view all news >> recent blogs 21/06/2013 09:38:58 happy 6th birthday sophie happy 6th to our beautiful little girl! read blog >> 21/06/2012 07:41:00 happy 5th birthday sophie... well, here we are celebrating sophie's 5th birthday - an amazing milestone that we are going to celebrate... read blog >> view all blogs >> the sophie story - living life on a ventilator with mitochondrial disease sophie patmore lives life permanently connected to a ventilator. her muscles are profoundly weak due to an undiagnosed genetic condition, currently thought to be an extremely rare form of mitochondrial disease. sophie suffers from a rare form of mitochondrial disease that has made her muscles extremely weak. because of this she has profound hypotonia which means she is very floppy. she has a tracheostomy and is permanently connected to a ventilator to help her breathe. she cannot swallow and therefore is fed through a tube directly into her tummy and at nearly three years old, her muscles are so weak that she cannot sit, crawl, walk, talk or even support her head up. she is however, the brightest toddler you could ever wish to meet! please visit the medical info page for a full list of sophie's symptoms. sophie developed completely normally until around three months of age when she began to squeak when she breathed (stridor) and struggled to feed - she would suck and suck on a bottle but the milk would not go down. the local gp concluded she had a virus three times before finally admitting her to hospital where she quickly became very floppy. sophie was then transferred to st georges hospital for what would be the start of a rollercoaster ride of highs and lows. sophie's full story can be found on the sophie's story page. when sophie first became poorly we didn't know what a 'neurologist' did, we didn't know what 'hypotonic' meant and we certainly didn't know the definition of a 'neuromuscular disease' or 'myopathy'. we have spent a lot of time researching information to help us understand sophie's illness and also how to deal with the pressures of caring for a complex special needs child. we have tried to find others with similar symptoms to sophie who had a diagnosis in the hope of finding out what is wrong with our little girl. we hope that by creating this site and sharing our story we may be able to help other parents who find themselves in a similar situation. please visit the useful links page for a list of sites that have helped us in the past. please feel free to browse our site and do not hesitate to contact us if you have any questions, advice or just want to chat. facts about mitochondrial disease mitochondrial disease is incurable. one in every 2,000 babies born will develop a mitochondrial disease in their lifetime. half will develop the disease before their 5th birthday. mitochondrial disease is nearly as common as childhood cancer. recent research results indicate that mitochondrial dysfunction is a large factor in degenerative disorders of aging like diabetes, heart disease, parkinson’s and alzheimer’s. there is little funding to support mitochondrial disease. new testing methods developed during the past ten years have advanced the diagnosis of some mitochondrial diseases. many mitochondrial disease patients go undiagnosed and, as a result, these patients and their families suffer. it is precisely this combination of “newness” and diagnostic difficulty that works against recognition of mitochondrial disease and the finding of an effective cure. the consequences of this genetic disorder can be devastating to those afflicted and their families. further information about mitochondrial disease what is mitochondrial disease? mitochondrial disease frequently asked questions mitochondrial myopathies frequently asked questions symptoms of mitochondrial disease mailing list if you would like to be kept up to date on sophie's progress, please enter your details below and we will add you to our mailing list. email already registered, please use another! first name * * last name * * email address * * * view our privacy policy featured links breathe on uk shooting star chase hospice care for children trewan sands childrens trust home page | sophie's story | our photos | recent blogs | medical info | useful links | contact us sophie patmore's story - © copyright 2018 - all rights reserved. www.bluesparkdigital.com

URL analysis for thesophiestory.co.uk


http://www.thesophiestory.co.uk
http://www.thesophiestory.co.uk/medical/mitochondrial-myopathies-faq.aspx
http://www.thesophiestory.co.uk/blogs/default.aspx
http://www.thesophiestory.co.uk/medical/default.aspx
http://www.thesophiestory.co.uk/contactus/default.aspx
http://www.thesophiestory.co.uk/
http://www.thesophiestory.co.uk/story/default.aspx
http://www.thesophiestory.co.uk/contactus/default.aspx
http://www.thesophiestory.co.uk/medical/what-is-mitochondrial-disease.aspx
http://www.thesophiestory.co.uk/story/default.aspx
http://www.thesophiestory.co.uk/messages/default.aspx
http://www.thesophiestory.co.uk/our-friends/default.aspx
http://www.thesophiestory.co.uk/medical/symptoms-of-mitochondrial-disease.aspx
http://www.thesophiestory.co.uk/medical/mitochondrial-disease-faq.aspx
http://www.thesophiestory.co.uk/news/default.aspx
breatheon.org.uk
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Whois Information


Whois is a protocol that is access to registering information. You can reach when the website was registered, when it will be expire, what is contact details of the site with the following informations. In a nutshell, it includes these informations;


Domain name:
thesophiestory.co.uk

Registrant:
Neil Patmore

Registrant type:
UK Individual

Registrant's address:
The registrant is a non-trading individual who has opted to have their
address omitted from the WHOIS service.

Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 10-Dec-2012

Registrar:
Easily Limited t/a easily.co.uk [Tag = WEBCONSULTANCY]
URL: http://www.easily.co.uk

Relevant dates:
Registered on: 29-May-2008
Expiry date: 29-May-2019
Last updated: 28-Feb-2017

Registration status:
Registered until expiry date.

Name servers:
dns0.easily.co.uk 185.83.100.31
dns1.easily.co.uk 185.83.102.32

WHOIS lookup made at 10:42:47 30-May-2017

--
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:

Copyright Nominet UK 1996 - 2017.

You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at http://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER co.uk.whois-servers.net

  ARGS thesophiestory.co.uk

  PORT 43

  TYPE domain

OWNER

  ORGANIZATION Neil Patmore

TYPE
UK Individual

ADDRESS
The registrant is a non-trading individual who has opted to have their
address omitted from the WHOIS service.
Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 10-Dec-2012

DOMAIN

  SPONSOR Easily Limited t/a easily.co.uk [Tag = WEBCONSULTANCY]

  CREATED 2008-05-29

  CHANGED 2017-02-28

STATUS
Registered until expiry date.

NSERVER

  DNS0.EASILY.CO.UK 185.83.100.31

  DNS1.EASILY.CO.UK 185.83.102.32

  NAME thesophiestory.co.uk

DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2017.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at http://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REGISTERED yes

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